What We Do
Anyone and everyone. We are a family who started a grassroots non profit to raise funds for the research of Primary Ciliary Dyskinesia, a rare lung disease that our young daughter Haylee lives with and currently has no cure. Our goal is to raise awareness for PCD in order to develop additional treatments and eventually a cure. Because PCD is so rare there is not a lot of funding for research. The HayStrong Foundation is named after her.
Our Ideas & Additional Information
We want to show strength and a strong respiratory system put together so maybe something with Lungs and a flexing arm.
Side note our daughters heart is also on the right side, it’s an associated condition called situs inversus totalis. So maybe a heart thrown in on the right.
PCD patients call each other warriors so think tough, strong, fit, perseverance, but also fragile.